Cocktail Evening for a Cause!

Tuesday, December 3, 2024 From 6:00 PM To 9:30 PM Add to Calendar 2024-12-03 18:00:00 2024-12-03 21:30:00 Cocktail Evening for a Cause! Enjoy an evening of cocktails, culture, and community for a cause! Join Matthias Lambert, Rare Diseases Expert, sharing inspiring insights into Téléthon's impactful work. French Library, 53 Marlborough St, Boston, Massachusetts, United States America/New_York

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Support the Telethon Fund! Enjoy an evening of cocktails, culture, and community for a cause! Join us at the French Library, with guest presenter Matthias Lambert, Rare Diseases Expert, who will be sharing insiring insights into Telethon's impactful work.

The Telethon is a charity event is a charity event organized since 1987 by the French Association against Muscular Dystrophy (AFM) to finance research projects on neuromuscular genetic diseases (myopathies, Steinert's myotonia) mainly, but also on other rare genetic diseases. The money is also used to help and support patients mainly suffering from muscular dystrophy on a daily basis.

We are greatful for the support of La Voile, Boston Accueil, and the Consulate General of France, whose contributions will make this an enjoyable and impactful evening.

Please register for this event using Eventbrite.

Event in English

Eventbrite: Cocktail for the Telethon

$30

About Mathias Lambert

Matthias Lambert, Ph.D., Senior Research Scientist

Matthias Lambert, Ph.D., is a patient-scientist and a leading expert in rare muscle diseases. After completing his Ph.D. in Health and Life Sciences at the University of Lille, France, in 2016, Dr. Lambert moved to Boston to research Duchenne Muscular Dystrophy with geneticist Prof. Louis Kunkel at Boston Children’s Hospital and Harvard Medical School. He later established the first research program dedicated to his own genetic condition, called TPM3-related myopathy, earning prestigious awards from the NIH and the Muscular Dystrophy Association. In October 2024, he joined Vertex Pharmaceuticals to advance pioneering therapies for patients. In addition to his research, Matthias is an active advocate for patient and disability rights. He has served as an ambassador for AFM-Telethon for several years and, in 2023, launched the first French Telethon in Boston, bringing together the French community to raise funds for rare disease research and therapeutic development.

Learn More about AFM-Telethon

AFM-Telethon is a patients' organisation fighting neuromuscular diseases, rare genetic disorders that kill muscle after muscle. Its primary goal : to conquer the disease. The French Muscular Dystrophy Association (AFM-Telethon) is an association of activists, patients and parents of patients, affected by rare, progressive and significantly disabling genetic diseases, known as genetic neuromuscular diseases. It was created out of a conviction and a desire, to cure diseases that were long considered to be incurable. AFM-Telethon is also the Telethon, a fundraising event which brought rare diseases out of scientific and medical obscurity and triggered a three-fold revolution: genetic, social and medical.

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Un grand merci to those whose support made this event possible

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